BDSRA Family Support Conference July 6-9, 2017. Thank you to Our Promise to Nicholas donors, sponsors and volunteers for your support at our events over the year. Part of the money we raised at our events goes toward this nursing care at the summer Batten Disease family conference. The kids

  Today this photo came up on my FB page to post. I have a love + hate for this photo. When I remember  the time it was taken. There was the sting of Nicholas’ rapid decline in his health. Today there is not a day that goes by that I would love to

Happy New Year! 9th Annual Easter Egg Hunt Festival Saturday April 15, 2017 NH Sportsplex - 68 Technology Drive, Bedford NH 8:30AM -12:00PM For Tickets and Sponsorship please go to the button on this web site that says Donate via QGiv, Then click on EVENTS Tickets on line- $8.00 per person

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Thank you to our sponsors, donors and volunteers. You make this happen for Our Promise to Nicholas! $41,000 Raised for Batten Disease, Researchers Gather in Bethesda Maryland.   Easter was in full swing as the Our Promise to Nicholas Foundation’s (OPTN) 8th Annual Easter Egg Hunt drew in more than

December 2012 Happy Holidays! Nicholas is now 9 ½ years old and it is hard to believe that Our Promise To Nicholas Foundation was founded 4 years ago. We sat at our kitchen table with friends and family to discuss how to start a foundation. Each year this holiday letter

Happy Halloween Our Promise To Nicholas foundation had our 4th annual Bedford Outdoor Movie Night Fundraiser on Saturday October 20, 2012 at the Reilly Field Complex in Bedford NH. Thank you to our sponsors this year Carrabba’s Italian Grill,  Community Events, Chris Malloy and Regal Cinema of Hooksett NH. Thank

 This Fall Nicholas started 4th Grade. It is still hard for me to believe he is also almost 9 1/2. An up date on Nicholas. He had not had a seizure for about 6 weeks which is the longest stretch he had gone for a while with out a seizure.