• Get Involved
    • Make a Donation
    • Our Sponsors
    • Batten Disease Support
  • Egg Hunt Festival 2022
  • About
    • Batten Disease
    • Nicholas
    • OPTN
    • Board of Directors
    • Contact
    • OUR BLOG
  • 2022 Newsletter
  • Donate Via Qgiv

BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee

July 15, 2018 by heather in Uncategorized
BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee

BDSRA Batten Disease Family Support Conference 2018 Nashville Tennessee. Thank you to our donors, sponsors, volunteers at our events, OPTN supporters, volunteers at the BDSRA in the affected kids room, our friends and our family who supported us to make this affected kids room a success each year. I believe we were scheduled to have 48 affected children in our care. They did not all come at once.This year again was very busy at different times with arts and crafts, lots of playing with toys and a visit to a pony. At our busiest times I was not able to take as many photos as I would have loved. We want this experience and care for the children and families affected by batten disease to be the best. They deserve it. Thank you for all who helped us to make this care awesome! You do make a difference in our life and the lives of these families.

Tweet
Share
Pin it
Previous Story2018 EGG HUNT FESTIVAL Next Story2018 John Tanner Pumpkin Shuffle 5 K
  • Popular
  • Latest
  • Comments
  • 11th January 2023

     2021 Newsletter

  • Southwest incident 24th December 2011

     Southwest incident

  • March/April 2011 17th April 2011

     March/April 2011

  • 2018 John Tanner Pumpkin Shuffle 5 K 23rd October 2018

     2018 John Tanner Pumpkin Shuffle 5 K

  • June/ July 2011 2nd August 2011

     June/ July 2011

  • 11th January 2023

     2021 Newsletter

  • 9th annual Nicholas Giving Tree Project 2022- Holiday Care Packages for Children with Batten Disease 11th January 2023

     9th annual Nicholas Giving Tree Project 2022- Holiday Care Packages for Children with Batten Disease

  • 2018 John Tanner Pumpkin Shuffle 5 K 23rd October 2018

     2018 John Tanner Pumpkin Shuffle 5 K

  • BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee 15th July 2018

     BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee

  • 2018 EGG HUNT FESTIVAL 14th May 2018

     2018 EGG HUNT FESTIVAL

  • Southwest incident 243104 Sun+00:002018-07-15T16:02:25+00:00+00:0007b+00:00Sun, 15 Jul 2018 16:02:25 +0000 2011

     Southwest incident

  • June/ July 2011 2715 PM00000040000002531 2011

     June/ July 2011

  • June 29, 2010 293104 J0000007+00:00 2010

     June 29, 2010

  • 312531 Julpm18 2011

     May 2011

  • March/April 2011 173104 PMpSun, 15 Jul 2018 16:02:25 +000002Sunday 2011

     March/April 2011

CATEGORIES

  • Fundraisers
  • Nicholas Update
  • Uncategorized

ARCHIVES

  • January 2023
  • October 2018
  • July 2018
  • May 2018
  • January 2018
  • December 2017
  • August 2017
  • July 2017
  • January 2017
  • November 2016
  • May 2016
  • January 2016
  • December 2015
  • November 2015
  • September 2015
  • June 2015
  • May 2015
  • April 2015
  • January 2015
  • December 2014
  • October 2014
  • July 2014
  • May 2014
  • February 2014
  • December 2013
  • November 2013
  • October 2013
  • July 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • December 2012
  • November 2012
  • October 2012
  • August 2012
  • July 2012
  • March 2012
  • February 2012
  • January 2012
  • December 2011
  • October 2011
  • August 2011
  • May 2011
  • April 2011
  • February 2011
  • December 2010
  • October 2010
  • September 2010
  • August 2010
  • July 2010
  • June 2010
  • May 2010
  • March 2010
  • January 2010
  • December 2009
  • November 2009
  • October 2009
  • September 2009
  • August 2009
  • July 2009
  • June 2009
  • May 2009
  • April 2009
  • March 2009
  • February 2009
  • January 2009
  • December 2008

NEWSLETTER SIGN-UP

Thank you for your subscription.
Your email format is wrong!
Sad, but we couldn't add you to our mailing list ATM.
Loading...
Donate Via Qgiv
Copyright Our Promise to Nicholas PO Box 10106 Bedford, NH 03110 | Website by Squawkdog
  • Get Involved
    ▲
    • Make a Donation
    • Our Sponsors
    • Batten Disease Support
  • Egg Hunt Festival 2022
  • About
    ▲
    • Batten Disease
    • Nicholas
    • OPTN
    • Board of Directors
    • Contact
    • OUR BLOG
  • 2022 Newsletter
  • Donate Via Qgiv