Calendar & Events
Here is a calendar that we use to track Nicholas’s progress
Calendar developed and supported by Kieran O'Shea
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UPCOMING EVENTS
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5th Annual Bedford Mom’s Club Easter Egg Hunt to Benefit OPTN
DATE: Saturday March 23, 2013
TIME: 9am -11am
PLACE: NH Sportsplex, 68 Technology Drive, Bedford NH
This years event will have music, entertainment, bounce house, face painting, games for the kids, sponsor tables, bake sale table, raffle baskets, silent auction, an egg hunt and more! The egg hunt will be promptly at 10AM. Eggs will be filled with candy and a few will have some special prizes to be won.
EGG HUNT WEB SITE click here
Our Promise to Nicholas Foundation
The Our Promise to Nicholas Foundation was founded in 2009 after Nicholas Dainiak was diagnosed with Batten Disease, a rare and currently incurable genetic disorder that affects an estimated two to four in every 100,000 children born in the United States. At that time, his parents, Chris and Heather, made a promise to Nicholas that they would do everything in their power to find a cure for this brutal and debilitating disease that will rob him of his childhood and take his life. In searching for a cure, the Foundation’s primary focus has been to fund research for Batten Disease that may also shed light on cures for more common diseases such as Parkinson’sand Alzheimer’s. For more information on Nicholas’ journey, OPTN-funded research initiatives, Batten Disease or to make a direct donation, visit the OPTN Foundation website at www.ourpromisetonicholas.com.
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BOWL FOR NICHOLAS
DATE: Sunday May 19, 2013
PLACE: Merrimack Ten Pin, 698 Daniel Webster Highway, Merrimack NH
TIME: 11 AM- 2PM
Tickets include unlimited bowling with LED lighting, Shoe Rental, Pizza Party and Beverages
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5th Annual Fore Nicholas Golf Tourament
Last years event was a great success, raising over $20,000 for Batten disease research
Date: Saturday June 22, 2013
Place: Stonebridge Country Club, Goffstown, NH
Time: 1:30PM Start
$125 per player which includes 18 holes of golf and gourmet dinner
Also Dinner Option only$50.
18 Hole Golf Scramble, Team Prizes, Raffles, Cocktail Recption, Music, Dancing and Live Auction!
Clam & Lobster Bake, Chicken, Prime Rib
More information coming soon!
Contact Person: cdainiak@yahoo.com or heatherdainiak@hotmail.com
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Our Promise To Nicholas goes GREEN!A company called Shaklee has taken on our foundation.
Shaklee sells products that appeal to people interested in protecting / improving their mind, body, soul and environment. This company has been in business for over 50 years; it prides itself on its commitment to finding and developing quality non-toxic household products, vitamins, and many other products.
In my household, we are dealing with Nicholas’s eczema – we have to be very mindful of perfumes. I bought some bath products, non-toxic bathtub cleaner, non-toxic hand-soap, children’s vitamins and a multi-vitamin for myself on the Shaklee website. A portion of each dollar spent will also benefit the Our Promise to Nicholas Foundation. Look for the “Go Green” button on our web site.
2. Coin Boxes- Be in charge of one coin box at a location near you. You would be surprised how much money you can raise from coins.
3. We need volunteers- At all events.
- Outdoor Halloween Movie Night- Saturday October 13,2012 Bedford NH
Nicholas Age 5 1/2
1st Annual Fore Nicholas Golf Outing 2009
Cost: