Thank you to our sponsors, donors and volunteers. You make this happen for Our Promise to Nicholas! $41,000 Raised for Batten Disease, Researchers Gather in Bethesda Maryland. Easter was in full swing as the Our Promise to Nicholas Foundation’s (OPTN) 8th Annual Easter Egg Hunt drew in more than
EASTER EGG HUNT INFORMATION! MARCH 23, 9-11AM, NH SPORTSPLEX, BEDFORD, NH JOHN TANNER All of us at the Our Promise to Nicholas Foundation are deeply saddened to learn of the untimely death of a beloved friend and supporter
Facebook link to OPTN.CURE 4th annual FORE! Nicholas Golf Tournament and Dinner Thank you to all our volunteers and golfers at this years FORE! Nicholas Golf Tournament and Dinner! Thanks to you the event was a huge success. Please see your photos in the links below, provided by Debbie
THANKS to all the MOMs and our amazing community for coming out to support such a great event. We far surpassed last year’s totals for people attended and money raised! Click here for more web site to Mom’s Club Easter
Photos from Our Promise To Nicholas 2nd Annual Golf Outing, Friday June 18, 2010 Stonebridge Country Club. We raised $17,000. It was a great event! Thank you to Stonebridge Country Club. They went out of their way to ensure a successful day for us. We are proud to have them
Nicholas age 6 1/2 Christmas eve: “WOW mom! Santa left presents for us at our door step!” per William my 3 year old. A anonymous person in our community left a tag only saying Love Santa. Chris and i were so touched. I was looking at a picture of Nicholas and William
We took a trip down to Disney World in Orlando Fl at the end of last month and stayed for Halloween. It was a fun trip despite Nicholas getting sick as soon as we got down there. We think it might have been from receiving the H1N1 vaccination only a few
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9th annual Nicholas Giving Tree Project 2022- Holiday Care Packages for Children with Batten Disease
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2018 John Tanner Pumpkin Shuffle 5 K
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15th July 2018
BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee
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14th May 2018
2018 EGG HUNT FESTIVAL
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