by siteadmin | Oct 1, 2025 | Uncategorized
2025- Join Us for the 12th Annual Nicholas Holiday Giving Tree Project We are excited to launch our 12th Nicholas Holiday Giving Tree Project, sending USPS Priority care packages to families affected by Batten disease. These children are living with a fatal...
by siteadmin | Oct 1, 2025 | Uncategorized
The 2025 BDSRA Family Support Conference: A Grateful Recap The 2025 BDSRA Family Support Conference (July 10–14 in Lincoln, Nebraska) was an unforgettable gathering of families, friends, clinicians, industry partners, and more. Here’s a glimpse of the many beautiful...
by siteadmin | Jan 24, 2025 | Uncategorized
8th Translational Research Conference for the Management of NCLs – November 20-22, 2024, at The Westin Lombard Hotel, Chicago The 8th Translational Research Conference for the Management of NCLs took place in Chicago from November 20-22, 2024, bringing together...
by siteadmin | Jan 24, 2025 | Uncategorized
Nicholas Giving Tree Project Holiday Care Packages for Children with Batten Disease – 2024 This year marks the 10th anniversary of the Nicholas Giving Tree Project, and we are proud to share that we sent out 67 holiday care packages to children across the United...
by siteadmin | Nov 1, 2024 | Uncategorized
Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease Location:Our Promise to Nicholas FoundationPO Box 10106Bedford, NH 03110 About the Project:We are excited to announce the 11th annual Nicholas Holiday Giving Tree...
by siteadmin | Nov 1, 2024 | Uncategorized
8th Annual Translational Research Conference for the Management of NCLs November 20-22, 2024 | Lombard, Chicago We are excited to announce that the 8th annual Translational Research Conference for the Management of NCLs will take place in Lombard, Chicago, from...
