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March 2016

Easter Egg Hunt 2016

March 26, 2016 @ 8:30 am - 12:00 pm
NH Sportsplex, 68 Technology Drive
Bedford, NH 03110 United States
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Easter is in full swing as the Our Promise to Nicholas Foundation's (OPTN) 7th Annual Easter Egg Hunt draws in more than 1,200 guests who enjoy the fun festivities at the NH Sportsplex in Bedford

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Batten Research Alliance Bi-Annual Conference

March 29, 2016
Unnamed Venue Bethesda, MD United States

–Bethesda, Maryland March 29th- Hosted by the following 10 Family Foundations, OPTN is proud to support this innovative workshop. Blake's Purpose Mary Payton Miracle Foundation Fight for Nicholas Ethan's Reason Noah's Hope Hope 4 Bridget Garrett the Grand Taylor's Tale Drew's Hope BDSRA

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October 2016

Grant Submissions Deadline

October 1, 2016

REQUEST FOR APPLICATIONS: The Batten Research Alliance is pleased to announce a “new” funding opportunity for research on the infantile (INCL) and late infantile (LINCL) forms of Batten Disease, with funding beginning in February, 2015. Recent developments in stem cell biology, gene transfer therapy, oligonucleotide-mediated exon skipping, and delivery systems…

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October 2, 2016 @ 10:00 am - 5:00 pm
John Tanner Memorial Wayland, MA United States + Google Map

Our Promise to Nicholas Foundation is proud to anounce this year's fundraiser in remembrance of Nicholas' marathon runner who passed away in the NYC half marathon in 2013. Come race with me!  www.johntanner5K2016.racewire.com If you have any questions, please contact heatherdainiak@hotmail.com or 603-785-4249

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April 2017

9th Annual Easter Egg Hunt 2017

April 15, 2017 @ 8:30 am
NH Sportsplex, 68 Technology Drive
Bedford, NH 03110 United States
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October 2017

John Tanner Pumpkin Shuffle

October 14, 2017

To Benefit Children with Batten Disease. Race starts and finishes behind Russell's Garden Center: 397 Boston Post Road, Wayland, MA Every participant receives a free mini pumpkin. Special Guest: Erika Tarantal - Anchor/Reporter for WCVB in Boston. She reports for the New Center 5 Eye Opener and contributes to the…

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March 2018

10th Annual Easter Egg Hunt 2018

March 31 @ 8:00 am - 12:00 pm
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