9th NCL Translational Science and Therapeutics Conference

The Our Promise to Nicholas Foundation is proud to host the 9th NCL Translational Science and Therapeutics Conference, taking place November 11–13, 2026, in Boston, Massachusetts. This year marks an exciting milestone as the conference moves to Boston for the first time, following many successful years in Chicago.

This highly collaborative meeting brings together scientists, clinicians, industry partners, and patient advocacy organizations from around the world, all focused on advancing translational research, clinical care, and therapeutic development for Batten disease. The conference also welcomes researchers from outside the Batten disease field whose expertise in emerging technologies and disease biology can help spark innovation and accelerate progress.

The scientific program is led by Dr. Jill Weimer and her team at Sanford Research, whose longstanding leadership has helped shape this meeting into one of the premier gatherings in the NCL community.

Over the years, this meeting has become known for fostering meaningful collaboration, sharing new discoveries, and building momentum toward treatments and cures for individuals living with Batten disease.

We are honored to support both the scientific vision and the logistical coordination of this important gathering, and to help bring together a dedicated community committed to improving outcomes for families affected by Batten disease.

Registration on Eventbrite is now open. We encourage early registration.

Eventbrite Link here: 9th NCL Translational Science and Therapeutics Conference

We are grateful to the organizations and partners who have supported this conference over the years. This meeting has been made possible through the collective efforts of family foundations, patient advocacy organizations including BDSRA, and industry partners, all working together with a shared commitment to advancing research, improving care, and accelerating therapeutic development for individuals living with Batten disease.

Their ongoing dedication and collaboration continue to strengthen this meeting and help move the field forward.

Organizations interested in supporting the conference will receive recognition through both printed and digital materials. Sponsorship opportunities include:

Bronze: $750 (includes registration for one attendee)
Silver: $2,000 (includes registration for two attendees)
Gold: $3,000 (includes registration for three attendees)
Platinum: $7,500 (includes registration for four attendees and recognition as a meal sponsor)
Diamond: $15,000+ (includes registration for eight attendees and recognition as a premier meal sponsor)

Double Diamond: $20,000 (includes registration for ten attendees and named sponsor of two meals logo prominently displayed on the conference screen, visible to all attendees.

Credit Card Payment: https://secure.qgiv.com/for/optnf/event/trcftmon2ahp/

Registration for one (1) Includes: $400 registration fee covers one attendee and includes food and beverage services, conference room rental, and AV equipment. Hotel accommodations are not included.

Virtual Registration for one (1) includes: $50.00 . This registration provides access to live virtual streaming of the conference talks via Zoom. Instructions and links will be provided via email when available. This fee helps us cover the cost of AV equipment used for virtual access to the conference. 

Questions please contact me: Heather Dainiak  Email: heatherdainiak@hotmail.com