Our Promise to Nicholas Foundation funds nursing care support for the children with batten disease attending this conference. In this childcare room for children with Batten Disease we do lots of arts and crafts, play games, play with toys, sing, dance and give lots of love to these kiddos while they are in our care. This enables the families to attend the conference. Meet other families, learn about the disease, discover resources and learn how best to take care of their child. Families have the opportunity to meet expert clinician and scientist in the field and receive the love and support they need as they go forward in this journey. Look for photos of the children after the event!
