August 2010
Thank you Allie for coming with us!!!
Nicholas had a busy summer. Here are some more pictures from time at the Red Sox! He continues with PT, OT, Speech, Horseback riding and Massage every week. Never a dull moment here!
Here are a few pictures from the summer. Thank you Laura Pace for setting this all up for the Challanger Baseball team and our family. We had a great time!
nicholas with nurse Shantel
Nicholas with PT Venetia
Nicholas with nurse Theresa
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243103 Sun+00:002010-08-15T03:33:00+00:00+00:0008b+00:00Sun, 15 Aug 2010 03:33:00 +0000 2011
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173103 AMpSun, 15 Aug 2010 03:33:00 +000033Sunday 2011
Hello, and thank you so much for sharing your story. You and Chris are so courageous and inspirational. My hope is that Nicholas is okay. How has he been since your last post? I am hopeful that he has stabilized or improved. We are also in the Cornell study and have been offered a spot for surgery. We are so torn over what to do--debating what will be best for our child. In your time of stress and sadness, if you have any time and energy to respond briefly to my question, and to provide any further insight into your impressions of the gene therapy surgery, I would be most appreciative. Of course, I understand and respect completely if you are unable to respond. Thank you for considering this request. My deepest thoughts of care and hope go out to you and your family. Sincerely, Vincent