by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year sending our holiday care packages to children with Batten Disease. We sent them to over 50 children all over the United States. We know these packages give the families a small amount of joy during a holiday that can be stressful caring for their...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year volunteering/working in the affected kids care room at the BDSRA Summer Family Conference. This year it was in Denton Texas. Thank you for the support from Mary Payton Miracle Foundation, Fore Batten Foundation, and many other family foundations...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation funds nursing care support for the children with batten disease attending this conference. In this childcare room for children with Batten Disease we do lots of arts and crafts, play games, play with toys, sing, dance and give lots...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year sending our holiday care packages to children with Batten Disease.We sent them to over 50 children all over the United States. We know these packages give the families a small amount of joy during a holiday that can be stressful caring for their...
by siteadmin | Aug 8, 2023 | Uncategorized
The Indoor Maze to the Egg Hunt was Saturday April 8, at the NH Sportsplex in Bedford New Hampshire. The egg hunt events began in 2009 as the first fundraiser for Our Promise to Nicholas Foundation. This charity was established when Bedford parents Heather and Chris...
