BDSRA Batten Disease Family Support Conference 2018 Nashville Tennessee. Thank you to our donors, sponsors, volunteers at our events, OPTN supporters, volunteers at the BDSRA in the affected kids room, our friends and our family who supported us to make this affected kids room a success each year. I believe we were scheduled to have 48 affected children in our care. They did not all come at once.This year again was very busy at different times with arts and crafts, lots of playing with toys and a visit to a pony. At our busiest times I was not able to take as many photos as I would have loved. We want this experience and care for the children and families affected by batten disease to be the best. They deserve it. Thank you for all who helped us to make this care awesome! You do make a difference in our life and the lives of these families.
BDSRA Batten Disease Family Support Conference 2018 in Nashville, Tennessee