by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....
by siteadmin | Aug 8, 2023 | Uncategorized
First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...
by siteadmin | Aug 8, 2023 | Uncategorized
We have hosted this egg hunt event for thirteen years!This year Our Promise to Nicholas Easter Egg Hunt Festival was called theINDOOR MAZE to the Egg Hunt & Easter Bunny.Hosted on Saturday April 16, 2022, from 8:30AM to 12:00PM at the NH Sportsplex in Bedford, NH....
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nichoas Foundation will be supporting nursing care at $10,000 for the children with batten disease at this conference. The conference is July 8-10 in Cleveland Ohio. Heather Dainiak, Meghan Kelley, Bridget Kelley and Erin Kelley will be...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 6th NCL Translational Scientific Conference in Chicago. The conference will be November 3 & 4, 2022. We are currently working with Dr. Jill Weimer, Dr. David Pearce,...
by siteadmin | Aug 8, 2023 | Uncategorized
This will be our 9th year hosting the Nicholas Giving Tree Project- Holiday care packages for children with Batten Disease in the US. In the past we have mailed out between 50-75 holiday care packages. We hope this gives these families a small amount of joy during a...
by siteadmin | Aug 8, 2023 | Uncategorized
The Our Promise to Nicholas INDOOR MAZE to the Egg Hunt and Easter Bunny! DATE: Saturday April 16, 2022WHERE: NH Sportsplex Building #2, 68 Technology Drive, Bedford, NHTIME: 8:30AM- 12:00PMDoors open at 8:30AM and ends at Noon. On-Line Auction: Here is the...
by siteadmin | Aug 8, 2023 | Uncategorized
Saturday April 16, 2022NH Sportsplex- 68 Technology Drive, Bedford, NH8:30AM- 12:00 PMSave the Date.Sponsorship opportunities and tickets will be available soon. Please check back for more details about our upcoming event! Happy New Year...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 8th year sending our holiday care packages and we sent them to 52 children with batten disease all over the United States. We hope they give the families a small amount of joy during a holiday that can be stressful caring for their critically ill children....
by siteadmin | Aug 8, 2023 | Uncategorized
2021 Nicholas Giving Tree – Holiday Care Packages Please consider giving directly to a child with Batten Disease during the holiday from our wish list. We plan to send 55 or more holiday care packages to these children all over the US. Although it is not a cure for...
