The Our Promise to Nicholas Foundation Raises $27,500 for Batten Disease.
Lisa Kaveney, MS
Easter was in full swing as the Our Promise to Nicholas Foundation’s (OPTN) 7th Annual Easter Egg Hunt drew in more than 1,200 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford. The dome was alive with smiling faces, eggs blanketing the fields and kids scurrying about for those coveted treats. The authentic compassion, dedicated volunteers and the deep commitment demonstrated by the OPTN Board Members combined for another exciting year.
The OPTN Foundation is proud to have the dedication of the community in support of finding a cure for Batten Disease. A rare and currently fatal neurodegenerative disease, Batten afflicts hundreds of children in the United States. Seven years ago, the Egg Hunt was developed to create joy and celebrate Nicholas Dainiak’s life providing hope to those that loved him. It has been close to one year of Nicholas’ passing, but his spirit filled every corner of the room. It was with this love that OPTN raised $27,500; the most extravagant OPTN event to date!
Partnering with corporate sponsors who generously gave their time, money and resources, the feeling of success was enjoyed by all. This year’s corporate sponsors included: The NH Sportsplex, The Executive Health & Sports Center, Ira Lexus of Manchester, Bedford Ambulatory Surgical Center (BASC), Alkemy Partners, Catholic Medical Center and Bank of New Hampshire. The monies raised will continue to support the research needed, including a biorepository and natural history database through the University of Rochester and Harvard University, advancing the heath community in finding a cure for this awful disease.
Stuffing 6,000 eggs brings people together in the most positive state of mind. The gift of this event was about showing our children and others how a lighthearted event can make a meaningful difference. Knowing that Nicholas, in his own way, brought so many families, volunteers and community members together embodies the spirit of Easter, and the love of a family working tirelessly for the hope of one day finding a cure for such a debilitating disease. Outside of the basket raffles, bake sales, exhibitor tables, entertainment, music and magicians, clowns and candy a sense of deep pride was held for the work accomplished, the memories shared, and the reflection that on this day a difference was made.