$25,000 Raised for Batten Disease.
Easter was in full swing as the Our Promise to Nicholas Foundation’s (OPTN) 9th Annual Easter Egg Hunt drew in more than 1,100 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford.The dome was alive with smiling faces, with colorful eggs blanketing the fields and kids scurrying about for those coveted treats.
Our primary mission is to raise funds and create partnerships in order to promote awareness, provide education and develop translational research regarding Batten Disease.
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The mission of the Batten Research Alliance (BRA) is to solicit, accept, and provide an unbiased peer review of research proposals for the purposes of funding worthy medical enterprises to work towards curing Batten Disease. In the future it will provide needed medical information and resources to physicians, nurses and other medical personnel. By bringing other nonprofits, individuals, organizations, and the Batten medical world together, we can share ideas and be a stronger voice in the world. To become a member of the BRA, to submit research proposals, or for more information please visit BattenResearch.org.
Thank you to our sponsors for this race. Congress Asset Management of Boston, Superior Plumbing of MA, Russell’s Garden Center, Paul and MaryAnn McLaughlin Family Foundation, Merrifield Garden and Design, Castlemeghan Concepts, Tuna Landscaping, Stop and Shop of Wayland, Wegmens of Natick, Karma Coffee of Sudbury, Cooks Automotive of Wayland, The Villa Restaurant of Wayland, Global Goods, Great Harvest Bread, Performance Health Center and anonymous donors. Thank you Peg Mallott for taking photos, DJ Heath Hooper, the race timing company Mike and Cathy Merra- North Star Timing of Nashua NH, guidance from marathon runner- Julie Gillis. Thank you to our many volunteers, friends and family who made this event possible. Thank you to the Batten Families who provided our runners and walker with a photo of your child to be part of our race! It was a …
This video is for the families that are going through their own trials. All the trials are similar to the one we went through with Nicholas.