by siteadmin | Aug 7, 2023 | Uncategorized
Thank you everyone for your support of Nicholas. We are now home safe after our flight back from Disney World. Nicholas is doing well, but Heather is still shaken by the incident that occurred on Southwest Airlines. As you all know from meeting Nicholas personally or...
by siteadmin | Aug 7, 2023 | Uncategorized
Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every aspect of this content in the module Design settings and even apply custom CSS to this text in the module Advanced settings. Watch this you tube video...
by siteadmin | Aug 7, 2023 | Uncategorized
A quick update since Nicholas g-tube was placed on August 4, 2011. He had lost nearly 10 pounds over the summer and had difficulty opening his mouth and chewing his food. It was very stressful for both Nicholas and I so Chris and I decided it was time for a feeding...
by siteadmin | Aug 7, 2023 | Uncategorized
Welcome to mid summer. An update on Nicholas. School seemed to end quickly this spring and we quickly moved into summer fun to begin. How is Nicholas. I wish I could say that Nicholas has maintained from the last post but he continues to decline and I can see it...
by siteadmin | Aug 7, 2023 | Uncategorized
Happy 8th birthday Nicholas and Happy 11th Anniversary to Chris and I! Nicholas birthday was on May 9th and it is still hard to believe that he turned 8 this year. It actually was a very tough day for me to get through knowing Nicholas’s future. I spent part of the...
by siteadmin | Aug 7, 2023 | Uncategorized
Spring is here! I always have to start our first line as “we continue to be so busy with Nicholas!” Every day Nicholas’s day is filled with an adventure would be the best way to describe it! First, an update on Nicholas. We had our 6 month evaluation in NYC for the...
