10th Annual Easter Egg Hunt Festival
Saturday March 31, 2018
68 Technology Drive,
10,000 REASONS TO ATTEND OUR EGG HUNT!
That’s right, 10,000 eggs will be ready for your little ones to gather up at this year’s Easter Egg Hunt Festival scheduled for Saturday March 31, 2018 from 8:30am to 12:00pm at the NH Sportsplex in Bedford, NH. This popular family fundraising event from the OPTN, now in its 10th year, has become a favorite of the Hillsborough County residents and their children. OPTN’s mission is to raise funds and mold partnerships to promote awareness, provide education and fund the development of research to fight a rare and fatal brain illness called Batten Disease. It‘s easy, the more money raised; the more research that can be accomplished, the close we become to finding a cure for Batten.
OPTN is seeking sponsors, at all levels, for this year’s Egg Hunt to join their contributing sponsors: the NH Sportsplex, Executive Health and Sports Center, Alkemy Partners, Catholic Medical Center, Bedford Ambulatory Surgical Center, Spectrum Marketing and Rothwangl Dental Care. Through the support of corporate sponsorship’s, local businesses and community volunteers, last year’s event was attended by 1,600 guests who helped raise $25,000 for the Foundation! Our goal for 2018 is to raise funds to support expert nursing care for children suffering from Batten Disease and an essential research project supporting a national data base and patient registry through the University of Rochester, and Harvard University. With your support we can reach our goal.
The Easter Bunny is ready with his 10,000 candy and prize-filled eggs. For those not actively “hunting,” there will be live entertainment by Jungle Jim of Boston. In addition to the Easter Bunny there will be princesses, lovable characters, bounce houses, games, face painting, reading-a-long, a silent auction, a bake sale and a huge raffle for amazing Easter Baskets.
Tickets are being sold on-line for $8.00 per person or $28.00 per family. By registering online here you will be assured a speedy entry. Click on the link below to bring you to the page to order your tickets today. Tickets will still be at the door for $10 per person and $32 per family. The Sportsplex field fills up fast, please register at www.ourpromisetonicholas.com Cash, check or charge will be accepted at the door. The NH Sportsplex is located at 68 Technology Drive in Bedford, NH.
If you are interested, there are many ways in which you can make a difference, such as: event exhibitors, advertisement opportunities, and raffle basket donations.
Any questions please contact Heather Dainiak at firstname.lastname@example.org
Click to purchase your
Our primary mission is to raise funds and create partnerships in order to promote awareness, provide education and develop translational research regarding Batten Disease.
Apply for research grants at our sister site:
The mission of the Batten Research Alliance (BRA) is to solicit, accept, and provide an unbiased peer review of research proposals for the purposes of funding worthy medical enterprises to work towards curing Batten Disease. In the future it will provide needed medical information and resources to physicians, nurses and other medical personnel. By bringing other nonprofits, individuals, organizations, and the Batten medical world together, we can share ideas and be a stronger voice in the world. To become a member of the BRA, to submit research proposals, or for more information please visit BattenResearch.org.
The U.S. Food and Drug Administration today approved Brineura (cerliponase alfa) as a treatment for a specific form of Batten disease. Brineura is the first FDA-approved treatment to slow loss of walking ability (ambulation) in symptomatic pediatric patients 3 years of age and older with late infantile neuronal ceroid lipofuscinosis type 2 (CLN2), also known as tripeptidyl peptidase-1 (TPP1) deficiency.
Egg Hunt Festival- On Saturday April 15, OPTN hosted their ninth Egg Hunt Fundraiser. It drew in more than 1,100 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford, NH. Over 10,000 candy filled colored eggs covered an entire indoors sports field. Kids enjoyed this festive morning event playing games, listening to music, enjoying live entertainment, face painting, jump houses, painting with Canvas road show, scrumptious goodies and photos with the Easter Bunny! This year OPTN is proud of the many corporate sponsors, personal sponsors and volunteers who made this event so successful, raising over $25,000!
Join us at next year’s Egg Hunt – Saturday March 31, 2018 starting at 8:30am at the NH Sportsplex, Bedford NH
This video is for the families that are going through their own trials. All the trials are similar to the one we went through with Nicholas.