Upcoming Events

  • Grant Submissions Deadline 2016

    The Batten Research Alliance is pleased to announce a “new” funding opportunity for research on the infantile (INCL) and late infantile (LINCL) forms of Batten Disease, with funding beginning in February, 2017. Recent developments…More
    OPTN-EggHuntPSTR-0116-LR (2)

  • 9th Annual Easter Egg Hunt 2017

    Saturday April 15, 2017 
    Join us at our 9th Easter Egg Hunt Festival- 10,000 plastic colored eggs filled with candy and prizes will be ready on the fields .. More

Our primary mission is to raise funds and create partnerships in order to promote awareness, provide education and develop translational research regarding Batten Disease.

Apply for research grants at our sister site:

BattenLogo_FinalThe mission of the Batten Research Alliance (BRA) is to solicit, accept, and provide an unbiased peer review of research proposals for the purposes of funding worthy medical enterprises to work towards curing Batten Disease. In the future it will provide needed medical information and resources to physicians, nurses and other medical personnel. By bringing other nonprofits, individuals, organizations, and the Batten medical world together, we can share ideas and be a stronger voice in the world. To become a member of the BRA, to submit research proposals, or for more information please visit BattenResearch.org.

January 2017

Happy New Year!
9th Annual Easter Egg Hunt Festival

Saturday April 15, 2017
NH Sportsplex – 68 Technology Drive, Bedford NH
8:30AM -12:00PM
For Tickets and Sponsorship please go to the button on this web site that says Donate via QGiv, Then click on EVENTS

Tickets on line– $8.00 per person and $28.00 per family (4) – print your receipt and bring to the event!
Tickets at the door $10.00 per person and $32.00 per family (4)
Your ticket will include: Egg Hunt among 10,000 eggs!, Live Children’s entertainment, music, children’s games, Bouncy house, face painting, prizes and photos …

This video is for the families that are going through their own trials. All the trials are similar to the one we went through with Nicholas.