Our primary mission is to raise funds and create partnerships in order to promote awareness, provide education and develop translational research regarding Batten Disease.
Apply for research grants at our sister site:
The mission of the Batten Research Alliance (BRA) is to solicit, accept, and provide an unbiased peer review of research proposals for the purposes of funding worthy medical enterprises to work towards curing Batten Disease. In the future it will provide needed medical information and resources to physicians, nurses and other medical personnel. By bringing other nonprofits, individuals, organizations, and the Batten medical world together, we can share ideas and be a stronger voice in the world. To become a member of the BRA, to submit research proposals, or for more information please visit BattenResearch.org.
Thank you to our sponsors, donors and volunteers. You make this happen for Our Promise to Nicholas! $41,000 Raised for Batten Disease, Researchers Gather in Bethesda Maryland. Easter was in full swing as the Our Promise to Nicholas Foundation’s (OPTN) 8th Annual Easter Egg Hunt drew in more than 1,500 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford. The dome was alive with smiling faces, eggs blanketing the fields and kids scurrying about for those coveted treats. The authentic compassion, dedicated volunteers and the deep commitment demonstrated by the OPTN Board Members combined for another exciting year. The OPTN Foundation is proud to have the dedication of the community in support of finding a cure for Batten Disease. A rare and currently fatal neurodegenerative disease, Batten afflicts hundreds of children in the United States. Seven years ago, the Egg Hunt was developed to create joy and celebrate Nicholas Dainiak’s life ...
This video is for the families that are going through their own trials. All the trials are similar to the one we went through with Nicholas.