Working together to understand and cure Batten Disease
HOW CAN YOU HELP
1 |
Make A Donation |
2 |
ComeTo Events |
3 |
How To Volunteer |
HOW CAN YOU HELP
Make A Donation
Come To Events
How To Volunteer
Welcome to Our Promise to Nicholas Foundation!
Our primary mission is to create partnership to promote awareness, support toward
families, provide education and develop translational research regarding Batten Disease.
Sadly, Nicholas lost his battle to Batten on May 9, 2014, on his 11th birthday.
In keeping our promise to Nicholas, we continue to work toward a cure
for this childhood disease.
Click here to see the post from the 2024 BDSRA Conference
Have a look at the amazing photos from
the BDSRA Family Support Conference that happened July 12-14, 2024, in St. Louis, MO.
8th Meeting – Translational Research Conference for the Management of NCLs
by heather | May 17, 2024 | Uncategorized | 0 Comments
BDSRA Family Support Conference- July 12-14, 2024, St. Louis, MO
by siteadmin | January 19, 2024 | Uncategorized | 0 Comments
Our Promise to Nicholas Welcomes 2024!
by siteadmin | January 18, 2024 | Uncategorized | 0 Comments
Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease 2023- Is complete!
by siteadmin | January 18, 2024 | Uncategorized | 0 Comments
9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
EGG HUNT FESTIVAL 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
April 8, 2023- A well-loved community event in Bedford, New Hampshire raised $20,000 for the fight against Batten disease. This year was Our Promise to Nicholas Foundation’s fourteenth annual spring Egg Hunt.
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Channel 9 WMUR Our Promise to Nicholas in the News – April 8, 2023
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
14th Annual Our Promise to Nicholas INDOOR MAZE to the Egg Hunt
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
9th annual Nicholas Giving Tree Project- Holiday Care Package for Children with Batten Disease
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
2022 Translational Research Conference for the Management of NCL’s November 3rd and November 4th , 2022
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
NCL Translational Scientific Conference November 3 & 4, 2022 in Chicago.
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
BDSRA Family Conference July 7-10, 2022, Cleveland, Ohio
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
13th Year- 25,000 Raised by Egg Hunt for Our Promise to Nicholas Foundation in 2022!
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
BDSRA Family Support Conference- July 8-10, 2022. Our Promise to Nicholas Foundation supports nursing care.
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
NCL Translational Scientific Conference November 3 & 4, 2022 in Chicago.
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Nicholas Giving Tree Project 2022
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
The Our Promise to Nicholas INDOOR MAZE to the Egg Hunt and Easter Bunny!
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
12th Annual Egg Hunt Festival
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
2021 Nicholas Giving Tree Project – Holiday Care Packages to children with Batten Disease.
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
2021 Nicholas Giving Tree – Holiday Care Packages
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Bunny & Friends Parade Thru Event Sunday March 28, 2021
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
The Bunny & Friends Parade Thru Event
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Happy New Year 2021!
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Dear Friends of Our Promise to Nicholas Foundation
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
The Nicholas Giving Tree Project 2019
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
5th Translational Research Conference for the Management of NCL’s, November 7 & 8, 2019, Chicago
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Dear Friends of Our Promise to Nicholas and John Tanner
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
You are making a difference!
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
BDSRA Family Support Conference July 18-21, 2019 Denver, CO
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
The Nicholas Giving Tree Project 2018
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
11th Egg Hunt raises $25,000 for Batten Disease by Our Promise to Nicholas Foundation
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
Crane of Light and Hope
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
FDA APPROVES
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
VIDEO IS FOR THE FAMILIES THAT ARE GOING THROUGH THEIR OWN TRIALS
by siteadmin | August 8, 2023 | Uncategorized | 0 Comments
2021 NEWSLETTER
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
9TH ANNUAL NICHOLAS GIVING TREE PROJECT 2022- HOLIDAY CARE PACKAGES FOR CHILDREN WITH BATTEN DISEASE
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
2018 JOHN TANNER PUMPKIN SHUFFLE 5 K
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
BDSRA BATTEN DISEASE FAMILY SUPPORT CONFERENCE 2018 IN NASHVILLE, TENNESSEE
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
2018 EGG HUNT FESTIVAL
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
2017 EGG HUNT FESTIVAL
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
2017 JOHN TANNER PUMPKIN SUFFLE 5 K RUN/WALK
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
NICHOLAS GIVING TREE HOLIDAY CARE PACKAGES 2017
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
SCIENTIFIC CONFERENCE 2017
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
THANK YOU TO OUR SCIENTIST
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
BDSRA FAMILY SUPPORT CONFERENCE 2017
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JULY 2017
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JANUARY 2017
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
HAPPY HOLIDAYS 2016
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
MARCH 2016 EASTER EGG HUNT AND SCIENTIFIC WORKSHOP
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JANUARY 2016
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
DECEMBER 2015
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
NOVEMBER/ DECEMBER 2015
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NOVEMBER 2015
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SEPTEMBER 2015
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JULY 2015
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JUNE 2015
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
GREAT GREEN BALLOON RACE
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
EASTER EGG HUNT 2015
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
DECEMBER 2014
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
HAPPY FALL FROM OUR PROMISE TO NICHOLAS FOUNDATION
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JULY 2014
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
6th Annual Fore! Nicholas Golf Tournament and Dinner
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
NICHOLAS R. DAINIAK
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
2014 FUNDRAISERS
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
DECEMBER 2013
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
NOVEMBER 2013
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OCTOBER 20, 2013
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
OCTOBER 2013 FUNDRIASERS
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
PICTURES FROM GOLF, KARATE AND BIKE-A-THON FUNDRAISERS 2013
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JUNE 2013
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
MAY 2013
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APRIL 2013
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MARCH 2013
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DECEMBER 2012
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
OCTOBER 2012
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
FALL 2012 UPDATE
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
AUGUST 2012
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
FORE! NICHOLAS GOLF TOURNAMENT
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
EASTER EGG HUNT 2012 INFORMATION
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
EASTER EGG HUNT FUNDRAIER 2012
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
JANUARY 2012
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
HOLIDAY LETTER 2011
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
SOUTHWEST INCIDENT
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
MEETING BOSTON RED SOX WALLY!
by siteadmin | August 7, 2023 | Uncategorized | 0 Comments
OCTOBER 2011
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JUNE/ JULY 2011
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MAY 2011
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MARCH/APRIL 2011
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JANUARY/FEBRUARY 2011
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DECEMBER 2010
by siteadmin | August 4, 2023 | Uncategorized | 0 Comments
OCTOBER 2010
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SEPTEMBER 2010
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LETTERS TO FAMILY WHILE IN NYC
by siteadmin | August 4, 2023 | Uncategorized | 0 Comments
AUGUST 2010
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JULY 31, 2010
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JUNE 29, 2010
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2ND ANNUAL GOLF OUTING
by siteadmin | August 4, 2023 | Uncategorized | 0 Comments
WELCOME TO OUR NEW SITE! 2010
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MAY 19, 2010
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MARCH 5, 2010
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JANUARY 31, 2010
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DECEMBER 31, 2009
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NOVEMBER 30, 2009
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OCTOBER 19, 2009
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SEPTEMBER 26, 2009
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AUGUST 20, 2009
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JULY 20, 2009
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JUNE 9, 2009
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MAY 12, 2009
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APRIL 15, 2009
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MARCH 24, 2009
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February 20th We are home!
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FEBRUARY 1, 2009
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JANUARY 11, 2009
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DECEMBER 2008
by siteadmin | August 3, 2023 | Uncategorized | 0 Comments