by siteadmin | Jan 18, 2024 | Uncategorized
Status of the 2024 Egg Hunt The OPTN Egg Hunt Fundraiser has been a beautiful journey for our family, and we will cherish these memories for the rest of our lives. This event has blossomed over the years, becoming bigger and better each year. Unfortunately, all good...
by siteadmin | Jan 18, 2024 | Uncategorized
This is the 9th year of sending out holiday care packages to children in the US with Batten Disease. We sent 62 children, which is the most we have ever! They were mailed November 29th to arrive before the December holiday. These packages are filled with donated new...
