On behalf of Our Promise to Nicholas Foundation we regret to inform everyone that the John Tanner Pumpkin Shuffle 5 K held on October 19, 2019 will be cancelled.
It has been an amazing 7 years hosting this race but each year there is less participation. We hope to kick off 2020 with a fresh start and a new event!
With your support, Our Promise to Nicholas Foundation has been able to provide family support for children stricken with this fatal brain disorder called Batten Disease. Because of your support we have also helped us raised money that has gone toward numerous important Batten Disease science such as the natural history and biorepository database and our scientific conferences. This brings expert Batten Disease clinicians and researchers from all over the world together to collaborate on the best way to cure this disease.
As you know we continue to remain very busy. We are supporting and helping to the fund our 4th scientific conference which will be in Chicago November 2019. We have provided the support for funding a NCL Research Clinic Coordinator at Massachusetts General Hospital. We are also proudly supporting the re-opening of a batten disease clinic at MGH for all types of batten disease.
Please continue to follow us and support our charity as we continued to travel down a new journey and into the rare disease community. We have exciting avenues connecting Our Promise to Nicholas Foundation to have earned the support from Massachusetts General Hospital, one of the top facilities in Boston. We appreciate your love and kindness toward our Nicholas and John Tanner’s Family. Please keep an out out for an upcoming event for 2020!