by siteadmin | Aug 8, 2023 | Uncategorized
2020 Nicholas Giving Tree ProjectDecember 2020 The 2020 Nicholas Giving Tree Project was a huge success! This was our 7th year sending our holiday care packages to the Batten Disease family community. These are small, but mighty, packages sent all over the US and a...
by siteadmin | Aug 8, 2023 | Uncategorized
The Our Promise to Nicholas Foundation has decided to CANCEL the Egg Hunt Festival on Saturday April 11, 2020. We love hosting this huge community event. This was going to be our 12th year! With the unknown spread of the Covid19 virus we fell it is our responsibility...
by siteadmin | Aug 8, 2023 | Uncategorized
Thank you for your donations toward the 2019 Nicholas Giving Tree Project. This year we sent holiday care packages to 43 children in the US who suffer from Batten Disease. These care packages provided happiness and joy for these families at a time of year that can be...
by siteadmin | Aug 8, 2023 | Uncategorized
Another successful conference with so much essential interactions and discussion between these scientist, researchers, clinicians and pharmaceutical companies. Grateful to see valuable communication, science and research advancing at a much faster pace for all NCL’s...
by siteadmin | Aug 8, 2023 | Uncategorized
On behalf of Our Promise to Nicholas Foundation we regret to inform everyone that the John Tanner Pumpkin Shuffle 5 K held on October 19, 2019 will be cancelled. It has been an amazing 7 years hosting this race but each year there is less participation. We hope to...
by siteadmin | Aug 8, 2023 | Uncategorized
Thank you to Dr. Jon Mink University of Rochester, Dr. Susan Cotman (MGH/Harvard University) and Dr. Florian Eichler (MGH/ Harvard University) for all you do! Chris and I met with these spectacular folks in Boston on Saturday June 1, 2019. The bond between the...
