A quick update since Nicholas g-tube was placed on August 4, 2011. He had lost nearly 10 pounds over the summer and had difficulty opening his mouth and chewing his food. It was very stressful for both Nicholas and I so Chris and I decided it was time for a feeding tube placement. It was placed at Mass General Hospital in Boston. He got through surgery with no complications. After a few weeks of only giving him formula tube feeding he gained back his weight and strength. He was able to begin to eat by mouth again. He still can not get enough calories he needs to maintain a healthy weight.
He still needs full assistance and feeding all meals but expresses a lot of pleasure while eating (saying mmmmm). He tires easily so I still tube feed him some during the day and night to make up any calories that were missing. All water and meds go through the g-tube which has been extremely helpful. Nicholas he is able to sit up into a sitting position using his arms and legs to get him into this position. He as not able to do this prior to the tube being placed.
He is able to walk with full assistance a further distance. He is happier and more smiles. He even kissed me last week which he also had not done for many months. Honestly it left me in tears of joy making me feel like I got a part of my Nicholas back.
