by siteadmin | Oct 1, 2025 | Uncategorized
2025- Join Us for the 12th Annual Nicholas Holiday Giving Tree Project We are excited to launch our 12th Nicholas Holiday Giving Tree Project, sending USPS Priority care packages to families affected by Batten disease. These children are living with a fatal...
by siteadmin | Oct 1, 2025 | Uncategorized
The 2025 BDSRA Family Support Conference: A Grateful Recap The 2025 BDSRA Family Support Conference (July 10–14 in Lincoln, Nebraska) was an unforgettable gathering of families, friends, clinicians, industry partners, and more. Here’s a glimpse of the many beautiful...
