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NCL Translational Scientific Conference November 3 & 4, 2022 in Chicago.

by siteadmin | Aug 8, 2023 | Uncategorized

Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....

BDSRA Family Conference July 7-10, 2022, Cleveland, Ohio

by siteadmin | Aug 8, 2023 | Uncategorized

First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...

13th Year- 25,000 Raised by Egg Hunt for Our Promise to Nicholas Foundation in 2022!

by siteadmin | Aug 8, 2023 | Uncategorized

We have hosted this egg hunt event for thirteen years!This year Our Promise to Nicholas Easter Egg Hunt Festival was called theINDOOR MAZE to the Egg Hunt & Easter Bunny.Hosted on Saturday April 16, 2022, from 8:30AM to 12:00PM at the NH Sportsplex in Bedford, NH....

BDSRA Family Support Conference- July 8-10, 2022. Our Promise to Nicholas Foundation supports nursing care.

by siteadmin | Aug 8, 2023 | Uncategorized

Our Promise to Nichoas Foundation will be supporting nursing care at $10,000 for the children with batten disease at this conference. The conference is July 8-10 in Cleveland Ohio. Heather Dainiak, Meghan Kelley, Bridget Kelley and Erin Kelley will be...

NCL Translational Scientific Conference November 3 & 4, 2022 in Chicago.

by siteadmin | Aug 8, 2023 | Uncategorized

Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 6th NCL Translational Scientific Conference in Chicago. The conference will be November 3 & 4, 2022. We are currently working with Dr. Jill Weimer, Dr. David Pearce,...
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Recent Posts

  • 8th Translational Research Conference for the Management of NCLs – November 20-22, 2024, at The Westin Lombard Hotel, Chicago
  • Nicholas Giving Tree Project Holiday Care Packages for Children with Batten Disease – 2024
  • Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease
  • 8th Meeting – Translational Research Conference for the Management of NCLs- November 20-22, 2024
  • BDSRA Family Support Conference- July 12-14, 2024, St. Louis, MO
  • Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease 2023- Is complete!
  • EGG HUNT FESTIVAL 2023
  • 9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
  • BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
  • BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
  • 9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
  • April 8, 2023- A well-loved community event in Bedford, New Hampshire raised $20,000 for the fight against Batten disease. This year was Our Promise to Nicholas Foundation’s fourteenth annual spring Egg Hunt.
  • Channel 9 WMUR Our Promise to Nicholas in the News – April 8, 2023
  • 14th Annual Our Promise to Nicholas INDOOR MAZE to the Egg Hunt
  • 9th annual Nicholas Giving Tree Project- Holiday Care Package for Children with Batten Disease

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