by siteadmin | Nov 1, 2024 | Uncategorized
Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease Location:Our Promise to Nicholas FoundationPO Box 10106Bedford, NH 03110 About the Project:We are excited to announce the 11th annual Nicholas Holiday Giving Tree...
by siteadmin | Nov 1, 2024 | Uncategorized
8th Annual Translational Research Conference for the Management of NCLs November 20-22, 2024 | Lombard, Chicago We are excited to announce that the 8th annual Translational Research Conference for the Management of NCLs will take place in Lombard, Chicago, from...
by siteadmin | Nov 1, 2024 | Uncategorized
BDSRA 2024 Family Conference – St. Louis, MO (July 12-14) This year’s BDSRA Family Conference in St. Louis was a memorable gathering filled with smiles, support, and community for families affected by Batten disease. Our team at “Camp Explorer” in the...
by siteadmin | Nov 1, 2024 | Uncategorized
2023 10th Annual Nicholas Giving Tree Project – Holiday Care Packages for Children with Batten Disease The 10th Nicholas Giving Tree Project was a heartwarming success, thanks to the many wonderful people who helped us prepare and send out holiday care packages for...
