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2022 Translational Research Conference for the Management of NCL’s November 3rd and November 4th , 2022

by siteadmin | Aug 8, 2023 | Uncategorized

The 7th gathering of the Translational Research Conference for the Management of NCLs was on Thursday November 3rd and Friday November 4th at the Westin Chicago Lombard Hotel in Lombard Chicago. This conference organizing committee: Jill Weimer, David Pearce,...

NCL Translational Scientific Conference November 3 & 4, 2022 in Chicago.

by siteadmin | Aug 8, 2023 | Uncategorized

Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....

BDSRA Family Conference July 7-10, 2022, Cleveland, Ohio

by siteadmin | Aug 8, 2023 | Uncategorized

First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...

13th Year- 25,000 Raised by Egg Hunt for Our Promise to Nicholas Foundation in 2022!

by siteadmin | Aug 8, 2023 | Uncategorized

We have hosted this egg hunt event for thirteen years!This year Our Promise to Nicholas Easter Egg Hunt Festival was called theINDOOR MAZE to the Egg Hunt & Easter Bunny.Hosted on Saturday April 16, 2022, from 8:30AM to 12:00PM at the NH Sportsplex in Bedford, NH....

BDSRA Family Support Conference- July 8-10, 2022. Our Promise to Nicholas Foundation supports nursing care.

by siteadmin | Aug 8, 2023 | Uncategorized

Our Promise to Nichoas Foundation will be supporting nursing care at $10,000 for the children with batten disease at this conference. The conference is July 8-10 in Cleveland Ohio. Heather Dainiak, Meghan Kelley, Bridget Kelley and Erin Kelley will be...
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Recent Posts

  • 8th Translational Research Conference for the Management of NCLs – November 20-22, 2024, at The Westin Lombard Hotel, Chicago
  • Nicholas Giving Tree Project Holiday Care Packages for Children with Batten Disease – 2024
  • Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease
  • 8th Meeting – Translational Research Conference for the Management of NCLs- November 20-22, 2024
  • BDSRA Family Support Conference- July 12-14, 2024, St. Louis, MO
  • Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease 2023- Is complete!
  • EGG HUNT FESTIVAL 2023
  • 9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
  • BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
  • BDSRA Family Support Conference in Denton, TX July 13- July 16, 2023
  • 9th Annual Nicholas Giving Tree Project- Holiday Care Packages for Children with Batten Disease. November 27, 2023
  • April 8, 2023- A well-loved community event in Bedford, New Hampshire raised $20,000 for the fight against Batten disease. This year was Our Promise to Nicholas Foundation’s fourteenth annual spring Egg Hunt.
  • Channel 9 WMUR Our Promise to Nicholas in the News – April 8, 2023
  • 14th Annual Our Promise to Nicholas INDOOR MAZE to the Egg Hunt
  • 9th annual Nicholas Giving Tree Project- Holiday Care Package for Children with Batten Disease

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