by siteadmin | Aug 8, 2023 | Uncategorized
https://www.wmur.com/article/promise-to-nicholas-easter-egg-hunt-batten-disease/43545694...
by siteadmin | Aug 8, 2023 | Uncategorized
DATE: Saturday April 8, 2023WHERE: NH Sportsplex Building #2, 68 Technology Drive, Bedford, NHTIME: 8:30AM- 12:00PM Doors open at 8:30AM and ends at Noon. Join us at the Our Promise to Nicholas INDOOR MAZE to the Egg Hunt! – We are happy to bring some joy to the...
by siteadmin | Aug 8, 2023 | Uncategorized
Fifty- five children with Batten Disease received holiday care packages from the 9th Nicholas Giving Tree Project. Seventy-five packages are filled with items the families would purchase to care for their child. These packages give the families a small amount of joy...
by siteadmin | Aug 8, 2023 | Uncategorized
The 7th gathering of the Translational Research Conference for the Management of NCLs was on Thursday November 3rd and Friday November 4th at the Westin Chicago Lombard Hotel in Lombard Chicago. This conference organizing committee: Jill Weimer, David Pearce,...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....
by siteadmin | Aug 8, 2023 | Uncategorized
First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...
