by siteadmin | Aug 8, 2023 | Uncategorized
Fifty- five children with Batten Disease received holiday care packages from the 9th Nicholas Giving Tree Project. Seventy-five packages are filled with items the families would purchase to care for their child. These packages give the families a small amount of joy...
by siteadmin | Aug 8, 2023 | Uncategorized
The 7th gathering of the Translational Research Conference for the Management of NCLs was on Thursday November 3rd and Friday November 4th at the Westin Chicago Lombard Hotel in Lombard Chicago. This conference organizing committee: Jill Weimer, David Pearce,...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....
by siteadmin | Aug 8, 2023 | Uncategorized
First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...
by siteadmin | Aug 8, 2023 | Uncategorized
We have hosted this egg hunt event for thirteen years!This year Our Promise to Nicholas Easter Egg Hunt Festival was called theINDOOR MAZE to the Egg Hunt & Easter Bunny.Hosted on Saturday April 16, 2022, from 8:30AM to 12:00PM at the NH Sportsplex in Bedford, NH....
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nichoas Foundation will be supporting nursing care at $10,000 for the children with batten disease at this conference. The conference is July 8-10 in Cleveland Ohio. Heather Dainiak, Meghan Kelley, Bridget Kelley and Erin Kelley will be...
