by siteadmin | Aug 7, 2023 | Uncategorized
Egg Hunt Festival- On Saturday March 31, 2018, OPTN hosted their tenth Egg Hunt Fundraiser. It drew in more than 1,100 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford, NH. Over 10,000 candy filled colored eggs covered an entire indoors sports...
by siteadmin | Aug 7, 2023 | Uncategorized
Egg Hunt Festival- On Saturday April 15, OPTN hosted their ninth Egg Hunt Fundraiser. It drew in more than 1,100 guests who enjoyed the fun festivities at the NH Sportsplex in Bedford, NH. Over 10,000 candy filled colored eggs covered an entire indoors sports field....
by siteadmin | Aug 7, 2023 | Uncategorized
John Tanner Pumpkin Shuffle 5 K Run/Walk- Saturday October 14, 2017, Russell’s Garden Center, Wayland, Massachusetts -This was OPTN’s 5th year hosting this run in a memory of John and his dedication to Nicholas and OPTN. This year we were honored to have Erika...
by siteadmin | Aug 7, 2023 | Uncategorized
2017 Nicholas Giving Tree- December 11, 2017- Over 40 families located in New England and though out the US donated items and various gift cards for our annual Nicholas Giving Tree holiday care packages. These packages were sent to 28 families, throughout the US,...
by siteadmin | Aug 7, 2023 | Uncategorized
Batten Disease Scientific Conference for November 29 and 30th, 2017 Bethesda, Maryland. OPTN, along with the support of other family foundations, BDSRA, Beyond Batten Disease Foundation and a several pharmaceutical companies funded the 4th scientific workshop. 57...
by siteadmin | Aug 7, 2023 | Uncategorized
Here are a few photo’s I wanted to highlight and let you know I had the opportunity to talk with a few of my Batten Disease scientists celebrities! Here in blue is Dr. Jonathan Mink and his crew from the University of Rochester, NY. They met with many families at...
