by siteadmin | Aug 8, 2023 | Uncategorized
On behalf of Our Promise to Nicholas Foundation we regret to inform everyone that the John Tanner Pumpkin Shuffle 5 K held on October 19, 2019 will be cancelled. It has been an amazing 7 years hosting this race but each year there is less participation. We hope to...
by siteadmin | Aug 8, 2023 | Uncategorized
Thank you to Dr. Jon Mink University of Rochester, Dr. Susan Cotman (MGH/Harvard University) and Dr. Florian Eichler (MGH/ Harvard University) for all you do! Chris and I met with these spectacular folks in Boston on Saturday June 1, 2019. The bond between the...
by siteadmin | Aug 8, 2023 | Uncategorized
BDSRA Family Support Conference July 18-21, 2019 Denver, CO Another fantastic BDSRA Batten Disease Family Support Conference in the books. This year the 2019 conference was located in Denver, Colorado. Thank you to our Our Promise to Nicholas sponsors and volunteers...
by siteadmin | Aug 8, 2023 | Uncategorized
The Nicholas Giving Tree Project 2018 Thank you! We had over 50 private donors from New Hampshire, Massachusetts, Vermont and as far as Illinois & Michigan who donated toward the Nicholas Giving Tree Project 2018. Thank you also to Eastern Bank in Bedford NH for...
by siteadmin | Aug 8, 2023 | Uncategorized
$25,000 Raised for Batten Disease. Easter has come and gone and we look forward to summer, but it is nice to remember a wonderful event this spring. The Our Promise to Nicholas Foundation’s (OPTN) 11th Annual Easter Egg Hunt drew more than 1000 guests who enjoyed the...
