by siteadmin | Aug 8, 2023 | Uncategorized
Thank you for your donations toward the 2019 Nicholas Giving Tree Project. This year we sent holiday care packages to 43 children in the US who suffer from Batten Disease. These care packages provided happiness and joy for these families at a time of year that can be...
by siteadmin | Aug 8, 2023 | Uncategorized
Another successful conference with so much essential interactions and discussion between these scientist, researchers, clinicians and pharmaceutical companies. Grateful to see valuable communication, science and research advancing at a much faster pace for all NCL’s...
by siteadmin | Aug 8, 2023 | Uncategorized
On behalf of Our Promise to Nicholas Foundation we regret to inform everyone that the John Tanner Pumpkin Shuffle 5 K held on October 19, 2019 will be cancelled. It has been an amazing 7 years hosting this race but each year there is less participation. We hope to...
by siteadmin | Aug 8, 2023 | Uncategorized
Thank you to Dr. Jon Mink University of Rochester, Dr. Susan Cotman (MGH/Harvard University) and Dr. Florian Eichler (MGH/ Harvard University) for all you do! Chris and I met with these spectacular folks in Boston on Saturday June 1, 2019. The bond between the...
by siteadmin | Aug 8, 2023 | Uncategorized
BDSRA Family Support Conference July 18-21, 2019 Denver, CO Another fantastic BDSRA Batten Disease Family Support Conference in the books. This year the 2019 conference was located in Denver, Colorado. Thank you to our Our Promise to Nicholas sponsors and volunteers...
