by siteadmin | Jan 26, 2026 | Uncategorized
2026 Translational Research Conference for the Management of NCL’s November 11-13, 2026 Marriott Boston Quincy 1000 Marriott Dr, Quincy, MA 02169 More information about registration and sponsorship coming soon. Watch the video from last...
by siteadmin | Jan 26, 2026 | Uncategorized
In 2025, Our Promise to Nicholas Foundation completed the 11th year of the Nicholas Giving Tree Project. This holiday season, we sent 66 holiday care packages to children across the United States living with Batten disease. Packages were mailed in early December to...
by siteadmin | Oct 1, 2025 | Uncategorized
2025- Join Us for the 12th Annual Nicholas Holiday Giving Tree Project We are excited to launch our 12th Nicholas Holiday Giving Tree Project, sending USPS Priority care packages to families affected by Batten disease. These children are living with a fatal...
by siteadmin | Oct 1, 2025 | Uncategorized
The 2025 BDSRA Family Support Conference: A Grateful Recap The 2025 BDSRA Family Support Conference (July 10–14 in Lincoln, Nebraska) was an unforgettable gathering of families, friends, clinicians, industry partners, and more. Here’s a glimpse of the many beautiful...
by siteadmin | Jan 24, 2025 | Uncategorized
8th Translational Research Conference for the Management of NCLs – November 20-22, 2024, at The Westin Lombard Hotel, Chicago The 8th Translational Research Conference for the Management of NCLs took place in Chicago from November 20-22, 2024, bringing together...
by siteadmin | Jan 24, 2025 | Uncategorized
Nicholas Giving Tree Project Holiday Care Packages for Children with Batten Disease – 2024 This year marks the 10th anniversary of the Nicholas Giving Tree Project, and we are proud to share that we sent out 67 holiday care packages to children across the United...
by siteadmin | Nov 1, 2024 | Uncategorized
Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease Location:Our Promise to Nicholas FoundationPO Box 10106Bedford, NH 03110 About the Project:We are excited to announce the 11th annual Nicholas Holiday Giving Tree...
by siteadmin | Nov 1, 2024 | Uncategorized
8th Annual Translational Research Conference for the Management of NCLs November 20-22, 2024 | Lombard, Chicago We are excited to announce that the 8th annual Translational Research Conference for the Management of NCLs will take place in Lombard, Chicago, from...
by siteadmin | Nov 1, 2024 | Uncategorized
BDSRA 2024 Family Conference – St. Louis, MO (July 12-14) This year’s BDSRA Family Conference in St. Louis was a memorable gathering filled with smiles, support, and community for families affected by Batten disease. Our team at “Camp Explorer” in the...
by siteadmin | Nov 1, 2024 | Uncategorized
2023 10th Annual Nicholas Giving Tree Project – Holiday Care Packages for Children with Batten Disease The 10th Nicholas Giving Tree Project was a heartwarming success, thanks to the many wonderful people who helped us prepare and send out holiday care packages for...
