by siteadmin | Nov 1, 2024 | Uncategorized
Nicholas Giving Tree Project 2024 – Holiday Care Packages for Children with Batten Disease Location:Our Promise to Nicholas FoundationPO Box 10106Bedford, NH 03110 About the Project:We are excited to announce the 11th annual Nicholas Holiday Giving Tree...
by siteadmin | Nov 1, 2024 | Uncategorized
8th Annual Translational Research Conference for the Management of NCLs November 20-22, 2024 | Lombard, Chicago We are excited to announce that the 8th annual Translational Research Conference for the Management of NCLs will take place in Lombard, Chicago, from...
by siteadmin | Nov 1, 2024 | Uncategorized
BDSRA 2024 Family Conference – St. Louis, MO (July 12-14) This year’s BDSRA Family Conference in St. Louis was a memorable gathering filled with smiles, support, and community for families affected by Batten disease. Our team at “Camp Explorer” in the...
by siteadmin | Nov 1, 2024 | Uncategorized
2023 10th Annual Nicholas Giving Tree Project – Holiday Care Packages for Children with Batten Disease The 10th Nicholas Giving Tree Project was a heartwarming success, thanks to the many wonderful people who helped us prepare and send out holiday care packages for...
by siteadmin | Aug 8, 2023 | Uncategorized
A well-loved community event in Bedford, New Hampshire raised $20,000 for the fight against Batten disease. This year was Our Promise to Nicholas Foundation’s fourteenth annual spring Egg Hunt. The Indoor Maze to the Egg Hunt was Saturday April 8, at the NH Sportsplex...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year sending our holiday care packages to children with Batten Disease. We sent them to over 50 children all over the United States. We know these packages give the families a small amount of joy during a holiday that can be stressful caring for their...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year volunteering/working in the affected kids care room at the BDSRA Summer Family Conference. This year it was in Denton Texas. Thank you for the support from Mary Payton Miracle Foundation, Fore Batten Foundation, and many other family foundations...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation funds nursing care support for the children with batten disease attending this conference. In this childcare room for children with Batten Disease we do lots of arts and crafts, play games, play with toys, sing, dance and give lots...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year sending our holiday care packages to children with Batten Disease.We sent them to over 50 children all over the United States. We know these packages give the families a small amount of joy during a holiday that can be stressful caring for their...
by siteadmin | Aug 8, 2023 | Uncategorized
The Indoor Maze to the Egg Hunt was Saturday April 8, at the NH Sportsplex in Bedford New Hampshire. The egg hunt events began in 2009 as the first fundraiser for Our Promise to Nicholas Foundation. This charity was established when Bedford parents Heather and Chris...
