by siteadmin | Aug 8, 2023 | Uncategorized
This is our 9th year sending our holiday care packages to children with Batten Disease.We sent them to over 50 children all over the United States. We know these packages give the families a small amount of joy during a holiday that can be stressful caring for their...
by siteadmin | Aug 8, 2023 | Uncategorized
The Indoor Maze to the Egg Hunt was Saturday April 8, at the NH Sportsplex in Bedford New Hampshire. The egg hunt events began in 2009 as the first fundraiser for Our Promise to Nicholas Foundation. This charity was established when Bedford parents Heather and Chris...
by siteadmin | Aug 8, 2023 | Uncategorized
https://www.wmur.com/article/promise-to-nicholas-easter-egg-hunt-batten-disease/43545694...
by siteadmin | Aug 8, 2023 | Uncategorized
DATE: Saturday April 8, 2023WHERE: NH Sportsplex Building #2, 68 Technology Drive, Bedford, NHTIME: 8:30AM- 12:00PM Doors open at 8:30AM and ends at Noon. Join us at the Our Promise to Nicholas INDOOR MAZE to the Egg Hunt! – We are happy to bring some joy to the...
by siteadmin | Aug 8, 2023 | Uncategorized
Fifty- five children with Batten Disease received holiday care packages from the 9th Nicholas Giving Tree Project. Seventy-five packages are filled with items the families would purchase to care for their child. These packages give the families a small amount of joy...
by siteadmin | Aug 8, 2023 | Uncategorized
The 7th gathering of the Translational Research Conference for the Management of NCLs was on Thursday November 3rd and Friday November 4th at the Westin Chicago Lombard Hotel in Lombard Chicago. This conference organizing committee: Jill Weimer, David Pearce,...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 7th NCL Translational Scientific Conference at The Westin Lombard Chicago Lombard, 70 Yorktown Center, Lombard, Chicago. The conference will be November 3 & 4, 2022....
by siteadmin | Aug 8, 2023 | Uncategorized
First thank you shout out goes to Meghan, Bridget and Erin Kelley who attend the conference with me from New Hampshire. They all take on a leadership role in the affected children’s care room. These young smart professional women take time out of their own busy lives...
by siteadmin | Aug 8, 2023 | Uncategorized
We have hosted this egg hunt event for thirteen years!This year Our Promise to Nicholas Easter Egg Hunt Festival was called theINDOOR MAZE to the Egg Hunt & Easter Bunny.Hosted on Saturday April 16, 2022, from 8:30AM to 12:00PM at the NH Sportsplex in Bedford, NH....
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nichoas Foundation will be supporting nursing care at $10,000 for the children with batten disease at this conference. The conference is July 8-10 in Cleveland Ohio. Heather Dainiak, Meghan Kelley, Bridget Kelley and Erin Kelley will be...
