by siteadmin | Aug 8, 2023 | Uncategorized
Saturday April 16, 2022NH Sportsplex- 68 Technology Drive, Bedford, NH8:30AM- 12:00 PMSave the Date.Sponsorship opportunities and tickets will be available soon. Please check back for more details about our upcoming event! Happy New Year...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 8th year sending our holiday care packages and we sent them to 52 children with batten disease all over the United States. We hope they give the families a small amount of joy during a holiday that can be stressful caring for their critically ill children....
by siteadmin | Aug 8, 2023 | Uncategorized
2021 Nicholas Giving Tree – Holiday Care Packages Please consider giving directly to a child with Batten Disease during the holiday from our wish list. We plan to send 55 or more holiday care packages to these children all over the US. Although it is not a cure for...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation – 2021 Bunny & Friends Parade Thru Event was on Sunday March 28 at the NH Sportsplex in Bedford. Another success for OPTN despite the cold weather and rained the entire event! Our mascots and volunteers are the ones who still...
by siteadmin | Aug 8, 2023 | Uncategorized
DATE: Sunday March 28, 2021 PLACE: NH Sportsplex, 68 Technology Drive, Building #1, Bedford, NH. TIME: 12:00PM- 3:00PMCost: FREE! We will graciously except monetary donations of cash or check at the event. There will be a donation bin. At this free three-hour...
by siteadmin | Aug 8, 2023 | Uncategorized
2020 Nicholas Giving Tree ProjectDecember 2020 The 2020 Nicholas Giving Tree Project was a huge success! This was our 7th year sending our holiday care packages to the Batten Disease family community. These are small, but mighty, packages sent all over the US and a...
by siteadmin | Aug 8, 2023 | Uncategorized
The Our Promise to Nicholas Foundation has decided to CANCEL the Egg Hunt Festival on Saturday April 11, 2020. We love hosting this huge community event. This was going to be our 12th year! With the unknown spread of the Covid19 virus we fell it is our responsibility...
by siteadmin | Aug 8, 2023 | Uncategorized
Thank you for your donations toward the 2019 Nicholas Giving Tree Project. This year we sent holiday care packages to 43 children in the US who suffer from Batten Disease. These care packages provided happiness and joy for these families at a time of year that can be...
by siteadmin | Aug 8, 2023 | Uncategorized
Another successful conference with so much essential interactions and discussion between these scientist, researchers, clinicians and pharmaceutical companies. Grateful to see valuable communication, science and research advancing at a much faster pace for all NCL’s...
by siteadmin | Aug 8, 2023 | Uncategorized
On behalf of Our Promise to Nicholas Foundation we regret to inform everyone that the John Tanner Pumpkin Shuffle 5 K held on October 19, 2019 will be cancelled. It has been an amazing 7 years hosting this race but each year there is less participation. We hope to...
