by siteadmin | Aug 7, 2023 | Uncategorized
Happy New Year and welcome to 2012! I did not post in December because I was extremely busy getting OPTN holiday mailing out on time before Christmas. I mailed 950 letters. I like to think they are Nicholas’s fan club. I feel lucky that so many would be interested in...
by siteadmin | Aug 7, 2023 | Uncategorized
Happy Holidays 2011. This is the letter that I sent out to 950 + friends of Nicholas as our OPTN 2011 memories. . Thank you for your continued support and reading my web site…… It is hard to believe it is December 2011 already and at the year end. Even though it is a...
by siteadmin | Aug 7, 2023 | Uncategorized
Thank you everyone for your support of Nicholas. We are now home safe after our flight back from Disney World. Nicholas is doing well, but Heather is still shaken by the incident that occurred on Southwest Airlines. As you all know from meeting Nicholas personally or...
by siteadmin | Aug 7, 2023 | Uncategorized
Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every aspect of this content in the module Design settings and even apply custom CSS to this text in the module Advanced settings. Watch this you tube video...
by siteadmin | Aug 7, 2023 | Uncategorized
A quick update since Nicholas g-tube was placed on August 4, 2011. He had lost nearly 10 pounds over the summer and had difficulty opening his mouth and chewing his food. It was very stressful for both Nicholas and I so Chris and I decided it was time for a feeding...
by siteadmin | Aug 7, 2023 | Uncategorized
Welcome to mid summer. An update on Nicholas. School seemed to end quickly this spring and we quickly moved into summer fun to begin. How is Nicholas. I wish I could say that Nicholas has maintained from the last post but he continues to decline and I can see it...
