by siteadmin | Aug 4, 2023 | Uncategorized
July just slipped by so quickly this year! Here is another quick update on Nicholas this month. He is doing well and remains very stable. I am not noticing any significant changes in this last month. Which is good. Only one two day virus with a few seizures but...
by siteadmin | Aug 4, 2023 | Uncategorized
Welcome to our new web site! We love it! The month of June has been busy at our house. With the end of the school year and the beginning of summer. Nicholas remains about the same medically with still a few seizures a month due to various virus that we think he must...
by siteadmin | Aug 4, 2023 | Uncategorized
Photos from Our Promise To Nicholas 2nd Annual Golf Outing, Friday June 18, 2010 Stonebridge Country Club. We raised $17,000. It was a great event! Thank you to Stonebridge Country Club. They went out of their way to ensure a successful day for us. We are proud to...
by siteadmin | Aug 4, 2023 | Uncategorized
Thank you for visiting the redesigned Our Promise To Nicholas web page! We are still under construction and the process of fine tuning continues. We wanted to share what we have so far as we continue to bring awareness to Batten Disease. In the next couple of weeks...
by siteadmin | Aug 4, 2023 | Uncategorized
I am not sure where the time went this month. Nicholas is been very stable in the last two months with no apparent changes. His seizures control also remains pretty good and only having seizures due to stomach bugs which lower his threshold. Nicholas is totally blind...
