by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation is excited to be working with a small committee to hosting the 6th NCL Translational Scientific Conference in Chicago. The conference will be November 3 & 4, 2022. We are currently working with Dr. Jill Weimer, Dr. David Pearce,...
by siteadmin | Aug 8, 2023 | Uncategorized
This will be our 9th year hosting the Nicholas Giving Tree Project- Holiday care packages for children with Batten Disease in the US. In the past we have mailed out between 50-75 holiday care packages. We hope this gives these families a small amount of joy during a...
by siteadmin | Aug 8, 2023 | Uncategorized
The Our Promise to Nicholas INDOOR MAZE to the Egg Hunt and Easter Bunny! DATE: Saturday April 16, 2022WHERE: NH Sportsplex Building #2, 68 Technology Drive, Bedford, NHTIME: 8:30AM- 12:00PMDoors open at 8:30AM and ends at Noon. On-Line Auction: Here is the...
by siteadmin | Aug 8, 2023 | Uncategorized
Saturday April 16, 2022NH Sportsplex- 68 Technology Drive, Bedford, NH8:30AM- 12:00 PMSave the Date.Sponsorship opportunities and tickets will be available soon. Please check back for more details about our upcoming event! Happy New Year...
by siteadmin | Aug 8, 2023 | Uncategorized
This is our 8th year sending our holiday care packages and we sent them to 52 children with batten disease all over the United States. We hope they give the families a small amount of joy during a holiday that can be stressful caring for their critically ill children....
by siteadmin | Aug 8, 2023 | Uncategorized
2021 Nicholas Giving Tree – Holiday Care Packages Please consider giving directly to a child with Batten Disease during the holiday from our wish list. We plan to send 55 or more holiday care packages to these children all over the US. Although it is not a cure for...
by siteadmin | Aug 8, 2023 | Uncategorized
Our Promise to Nicholas Foundation – 2021 Bunny & Friends Parade Thru Event was on Sunday March 28 at the NH Sportsplex in Bedford. Another success for OPTN despite the cold weather and rained the entire event! Our mascots and volunteers are the ones who still...
by siteadmin | Aug 8, 2023 | Uncategorized
DATE: Sunday March 28, 2021 PLACE: NH Sportsplex, 68 Technology Drive, Building #1, Bedford, NH. TIME: 12:00PM- 3:00PMCost: FREE! We will graciously except monetary donations of cash or check at the event. There will be a donation bin. At this free three-hour...
by siteadmin | Aug 8, 2023 | Uncategorized
2020 Nicholas Giving Tree ProjectDecember 2020 The 2020 Nicholas Giving Tree Project was a huge success! This was our 7th year sending our holiday care packages to the Batten Disease family community. These are small, but mighty, packages sent all over the US and a...
by siteadmin | Aug 8, 2023 | Uncategorized
The Our Promise to Nicholas Foundation has decided to CANCEL the Egg Hunt Festival on Saturday April 11, 2020. We love hosting this huge community event. This was going to be our 12th year! With the unknown spread of the Covid19 virus we fell it is our responsibility...
